Lisawrx

iTrader: (1)

Probs not, he shone lights at me today, and they were coming out the other side.

Tam the bam

Joking aside, I hope all goes well, I'll cross my fingers for ya hun xx

Lisawrx

iTrader: (1)

I know you do, and thanks for that.

Dedrater

Good Luck Lisa, I hope it all goes well for you. It will do, obviously.

Leslie

Above all Lisa, you should not concern yourself about bothering the doctors. All you have to remember is that they are getting as much as £120K PA and that they are paid that much to be available to you when you need the attention.

If you are not right, you must insist on proper checks. Hope all goes well for you.

Les

Lisawrx

iTrader: (1)

Thanks Guys.

Lee247

awww, hun. Best of luck to you. Hope it all goes well xx

It could be Mickyitis, you know. Love him to bits whilst he does your head in at the same time

Lisawrx

iTrader: (1)

Thanks Hun. xx

Don't worry, it can't be Mickyitis, I'm immune to him now.

Only joking, he's looked after me through all this.

New_scooby_04

iTrader: (4)

Lisa: practical advice: for the love of god make sure you have your pockets empty of anything metal before going near the MRI scanner.

YouTube - Chair gets stuck in an MRI machine

Best of luck; I'm sure all will turn out ok!

Lisawrx

iTrader: (1)

Jeez, no wonder they ask so many questions.

Had an MRI earlier this week already, had to take out all my earrings, glad I did now.

my06 ppp silver

iTrader: (2)

hi lisa, just been having a quick scan through here and one person has mentioned someone they knew suffering with something similair due to lifestyle (alcohol). i also had a similair spate of these about 12 years ago now. i must of had about a total of 8 over a period of about 6 yrs. i am happy to openly admit that this was due to heavy cannabis use (something i am glad to have behind me now). this was sometimes happening while i was under the influence or also the next day or so after use. do you have any recollection of tingling between the elbows and the fingertips beforehand? or of any awareness of hyperventilating? if you do have any "habits," drinking or otherwise it may be advisable to just have a period of time "off" to see how you go. if this is not the case then one good tip i can give is if you in any way suspect that you are going to have an onset (attack/fit/blackout) then the best thing YOU can do is to lie flat on the floor with as much space as possible around you, ( so you cant knock anything on top of you) this way you wont come around with a big gash in your head (as i have done). also tell your friends and relatives about your current condition, it can be quite scarey for them too (especially if they are unaware) and that they should just hold your head for you and TALK to you and reassure you, you would be surprised sometimes how much you can recollect from what someone said afterwards. more than anything though dont worry about it, this also can have a negative effect, it will almost certainly be treatable either by diet, lifestyle changes, or medication. hope this has helped and best of luck. Lee.

Lisawrx

iTrader: (1)

Thanks for the time you have taken to reply. Tbh, yes I like a drink (probably more than I should but not going daft), but I don't know as yet if it is related to that. There seems to be no pattern to when these things happen to me.

They have been very rare, but I certainly won't dismiss them being somehow lifestyle related, you never know.

There isn't really any warning sign I don't think (again they haven't happened often), but I do recall the last two times, I have felt kind of twitchy previous to them. A bit like you feel when adrenaline is kicking in.

At least now the experts are looking into this, it could be nothing, it could be something, I don't know, but hopefully we'll get to the bottom of it, and be able to do whatever needs done to fix me.

I'm trying not to worry t the moment, as there may be nothing to worry about. If there is, then, I'll cross that bridge when it comes. I have enough stress without worrying too much about this as well.

Again thanks for your reply, and concern.

Lee247

Yeah, he is alright is our Micky. Got some cracking pics of when we met up.
Honest hun, hope it all goes well xx

Lisawrx

iTrader: (1)

Need to see them pics hun, just don't post them on here

Cheers Lee, you really are a star.

I'll phone you and catch up soon, just getting a day where I'm not at an appointment, or sorting stuff out, would be a fine thing.

Leslie

Please keep us informed Lisa, all the best.

Les

The Zohan

Good luck Lisa!

Lisawrx

iTrader: (1)

Not much of an update, but sometimes it helps to let things out.

Went for my MRI head scan on Monday (not the most pleasant experience, but needs must), and had an ECG a couple of weeks ago. Just playing the waiting game for the results now.

I must admit, I do worry about waht is going on, as from about 18 months between seizures, I've now had another just over a week ago, closing the gap to about 6 months. It may be that I'm missing what triggers them (possibly tiredness), but I can't help worrying that I'm getting worse, or that there is something more serious going on. (neurologist seems to think I may be having epileptic episodes).

Well, shall wait and see, it's all I can do right now.

Thanks to anyone listening to me, and who have followed this.

Will

Lisa, i hope everything will be all right, and everything is crossed for you.. xx

richiewong

18 months between seizures! Thats a long time really. If it was concerning to them they would have you on Valproate or something by now.

Scoob99

iTrader: (1)

Ah Lisa, I am sorry to hear this as I had said before I myself thought you were having fits, your syptoms were spot on for an epileptic, now I also have noticed that you get stressed out a lot now this is a big concern and you say you get very tired too, I use to be exactly the same and my wife could pick up on this and she would know that I was going to have a fit sometime in the next few days, and so would keep an eye on me, one question Lisa, do you get a muzzy head say like a couple of days before, or get irritable, cos thats what use to happen to me, then I would go to bed and bang a fit would happen, my wife was brilliant she use to lay me on my side and take care of me, most women would have run a mile, and for at least 48 hours after my head was like I'd been on the p!ss for a day or so, when I use to have bad fits it would take me sometimes 3 days to get over them, All I can say is if you need to talk or have any concerns your not sure about PM me and I will give you my phone number and if you wanna talk about it I will gladly help, I know that frighted feeling it is not nice, you just take really good care of yourself xx
Cheers
Colin

Deep Singh

Hi Lisa.

Sorry but I missed this whole thread. Have you got the MRI scan back yet?

JB hit the nail on the head earlier when he said it can be tricky to tell a vaso vagal (faint) from a fit. You need the battery of blood tests and MRI to eliminate a cause (ie anything from Thyroid/diabetes to a brain lesion)

Once they are normal its about treating the symptoms. Its in the skill of how the neurologist takes the details of your 'episodes' that allows them to differentiate between a vaso vagal and a true epileptic seizure. Even then its sometimes impossible to tell.

Its not unusual to go 18 months or longer between fits.

The most important thing was to get under the care of a neurologist and that has happened. I'm sure they will sort you out.

All the best

Lisawrx

iTrader: (1)

Waiting on the results at the moment. My appointment to go back to the neurologist isn't until September, but that was arranged, before I even had a date for the MRI, and every appointment so far has changed, so I have no idea when I will find out the results.

I think I have just got a bit more worried, as there had been so long between fits, and now I've had 2 within 6 months. But all I can do is wait, and hope it's nothing serious.

Scoob99, I haven't really noticed anything too much beforehand (days), but slightly before they have all happened, I get twitchy, almost like you do when you are tired and adreneline(sp) kicks in, then right before, I usually think I just don't feel right, then bang it happens. This time I fell off the bed, but I must completely blackout, and have no memory of it, from the point of feeling strange. It does seem to take a long time to feel right again, I spent most of the rest of the day in bed. And even now (almost 2 weeks since), I don't feel at my best.

Micky has been a star, and really looks after me, and it means alot to me, to have someone by me like that. If it may help the doctors in anyway, he has actually filmed the latest one, we just can't seem to get it off the computer (onto a phone/disc)

stevebt

iTrader: (8)

Lisa I have software to get that onto a phone or disc

Deep Singh

Lisa, sorry but I'm on a Blackberry at the moment so its difficult to read all the thread in detail. BUT, if you have had 2 fits in 6 months and have now had your MRI I would advice you to pressurise your GP to get that September appt pushed forward. He can do it, you need to make sure he does

Lisawrx

iTrader: (1)

Might need your help then.

Lisawrx

iTrader: (1)

May be worth a trip back, as to be fair the neurologist doesn't know I've had another one. I could possibly contact him.

Scoob99

iTrader: (1)

Get on that phone woman ASAP, Do I have to raise my voice
Cheers
Colin

Turbohot

I think it is EEG (Electroencephalogram) that you were referred to, not ECG (Electrocardiography).

Edited to say that ^above is a way "back-in-date" comment, sorry.

Good luck with everything, Lisa.

Lisawrx

iTrader: (1)

No, hun. They said it was ECG. If that is the one where they put loads of sticky things round your *****, body and legs, then that's what they did, but I'm no doctor.

Turbohot

Ok.

I have an issue with my head (no wonder! ). I get electric type of vibrations and hear big bangs (internal) whilst trying to get into sleep. I have been consulted by a very thorough Biblical consultant (he even has a lecton to stand against, and he keeps himself upright standing all the way through his practice! I think he stands on one leg as well sometimes) with no diagnosis whatsoever, I have had an MRI scan too, and I await for an EEG now.

According to the consultant, he has had a small people with this complaint in his neurology career, and he does recognise it without calling me a bluff. But he says that there is no name for it in the medical dictionary. He has done rest of the tests, he can't find anything. So, he can't name it, he can't give me anything for it. According to my daughter, I have been abducted by aliens

However, your health problem sounds to be paid serious attention to, Lisa. As I said before, much good luck and best wishesX