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Old 25 May 2011, 10:50 AM
  #91  
Chip
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Originally Posted by pimmo2000
about a year and yes, if I eat certain foods it kicks off .. but if I exercise it hurts .. like an ache too ..

Its there all the time, although at different levels of severity .. attacks at the moment are every few weeks.
Pimmo,

Out of interest what foods start it off.

Chip
Old 25 May 2011, 01:49 PM
  #92  
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Originally Posted by Chip
Pimmo,

Out of interest what foods start it off.

Chip

Nothing particular .. some days Chocolate, some days yoghurt .. sometimes a drink of water.
Old 25 May 2011, 02:39 PM
  #93  
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Originally Posted by Coffin Dodger
You think that but my Dad was diagnosed with cancer of the oesophagus via an endoscope exam. He was pretty fit and healthy at the time and was only having the exam as a routine check for some other problem he had in the past. On that basis it was fortunate that they caught it in time however the operation and recovery was to put it mildly horrific as that part of the body is not easy to access due to your rib cage etc. being in the way. Two days in intensive care + a few weeks in hospital after that and lots of morphine.

As they take a section of the oesophagus out then pull the stomach up to join it his stomach capacity was also reduced meaning he can't eat as much now and some foods need to be avoided (like a gastric band for fatties).

So finding something and treating it is not always the best prognosis if it leaves you in a poor state after

Five years on he's now been diagnosed with bowel cancer so not good really though again they hope they can treat it

So think yourself lucky Have you tried going on a really basic diet for a few weeks then slowly introducing other foods to see if anything upsets you? A friend of mine is an NHS dietician, works with patients with kidney problems, seem to remember her mentioning some sort of hypo allergenic diet think it was something like chicken, pears and water? Eat that for a while then start adding in other foods. Seek out someone who knows what they're talking about though.

As also mentioned my indigestion can be bad when I'm stressed.
Sorry to hear that your dad has got a second go now-must be a bad worry for him.

I had that too and they did say it is the easiest of the cancers to cure provided it is caught in time. The surgeon whistled me in for the op' within 2 weeks and he snipped the tumour out and stitched the pipery back together. He had to go through the rib cage again since it was high up and it is the second time I have had the skil saw though my chest bone after an earlier quad bypass.

I have just finished the five year regular checks and he has signed me off saying he is happy with it all. Big relief and I wish your father an easy ride through it all.

Les
Old 25 May 2011, 02:41 PM
  #94  
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Originally Posted by pimmo2000
Nothing particular .. some days Chocolate, some days yoghurt .. sometimes a drink of water.
Silly question maybe, but have they checked you for a small hernia somewhere?

Les
Old 25 May 2011, 05:05 PM
  #95  
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Originally Posted by Leslie
Silly question maybe, but have they checked you for a small hernia somewhere?

Les

No idea .. lol I dunno what they have looked for.
Old 26 May 2011, 11:42 AM
  #96  
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Well I hope they come uip with a satisfactory answer for you. I can understand how you feel about it.

Les
Old 02 June 2011, 08:22 AM
  #97  
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ok, now I've been moved from two Omeprazole 20mg to 40mg esomeprazole, which is Nexium ..

Fingers crossed ..
Old 02 June 2011, 10:48 PM
  #98  
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Hey mate, have a google at costochondritis - I had this around November last year, awoke me from my sleep, with a tightness and sharp pain in the centre of my chest, was convinced I was having a heart attack.

3 different GP's were unsure if it was severe acid reflux, or stomach ulcers or costochondritis. Was tested for helicobacter which tested positive. This blitzed this with anitbiotics. I was then prescribed Lansoprazole pills to reduce the amount of stomach acid produced, then another GP advised he thought it was probably costochondritis.

Took just over 4 months of no physical exercise other than the occasional gentle walk to get it cleared. But now feel fine.
Old 02 June 2011, 10:51 PM
  #99  
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Originally Posted by tarmac terror
Hey mate, have a google at costochondritis - I had this around November last year, awoke me from my sleep, with a tightness and sharp pain in the centre of my chest, was convinced I was having a heart attack.

3 different GP's were unsure if it was severe acid reflux, or stomach ulcers or costochondritis. Was tested for helicobacter which tested positive. This blitzed this with anitbiotics. I was then prescribed Lansoprazole pills to reduce the amount of stomach acid produced, then another GP advised he thought it was probably costochondritis.

Took just over 4 months of no physical exercise other than the occasional gentle walk to get it cleared. But now feel fine.
The condition causes localized chest pain that you can reproduce by pushing on the cartilage in the front of your rib cage.
not something that affects me mate, but thanks
Old 02 June 2011, 11:16 PM
  #100  
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Originally Posted by Leslie
Sorry to hear that your dad has got a second go now-must be a bad worry for him.

I had that too and they did say it is the easiest of the cancers to cure provided it is caught in time. The surgeon whistled me in for the op' within 2 weeks and he snipped the tumour out and stitched the pipery back together. He had to go through the rib cage again since it was high up and it is the second time I have had the skil saw though my chest bone after an earlier quad bypass.

I have just finished the five year regular checks and he has signed me off saying he is happy with it all. Big relief and I wish your father an easy ride through it all.

Les

My Dad has been diagnosed with this a few weeks ago (cancer of the oesophagus)

His symptoms started when he kept getting pain when eating. Went and had some checks (camera down throat) and they confirmed growth in oesophagus.

As it happens he has got back from hospital this afternoon after spending the night in for having a small keyhole op yesterday on his stomach which they just carried out some tests & checks to make sure the cancer hasn't spread to any of his stomach, he also had another larger camera down the throat for more checks........ Thankfully this is all clear so it's 'just' the growth where the cancer is located (if 'just' is the word to use!).

He has been told the operation to remove it is a major one. As already mentioned they remove an area of the stomach and oesophagus then pull the stomach up to the remaining part of the oesophagus. They have to break or remove a rib, collapse a lung and various other things to get to the area. He will then spend 3 weeks in hospital during which time he will initially be fed via a tube in his neck!

Before all this happens he will be on a course of chemo for three months, then rest for a further two before having the op.

So he is in for a tough time me thinks. He mentioned to the consultant today he was thinking about not actually having the op due to how it will leave him - careful what he eats, will not want to eat a full meal again, can't do any manual work anymore etc (his done manual work all his life). The consultant suggested he goes ahead with the op, without it he would be dead within 16 months and it would not be a pleasant death at that!!!

Anyway, thats depressing enough for one night! Sometimes you can be thankful that they didn't find any issues, although it must be frustrating if you experience pain etc.

Hope you/they soon find the cause of your issue Pimmo and its not so serious.

Good luck!

Last edited by stiscooby; 02 June 2011 at 11:21 PM.
Old 03 June 2011, 02:31 PM
  #101  
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Originally Posted by stiscooby
My Dad has been diagnosed with this a few weeks ago (cancer of the oesophagus)

His symptoms started when he kept getting pain when eating. Went and had some checks (camera down throat) and they confirmed growth in oesophagus.

As it happens he has got back from hospital this afternoon after spending the night in for having a small keyhole op yesterday on his stomach which they just carried out some tests & checks to make sure the cancer hasn't spread to any of his stomach, he also had another larger camera down the throat for more checks........ Thankfully this is all clear so it's 'just' the growth where the cancer is located (if 'just' is the word to use!).

He has been told the operation to remove it is a major one. As already mentioned they remove an area of the stomach and oesophagus then pull the stomach up to the remaining part of the oesophagus. They have to break or remove a rib, collapse a lung and various other things to get to the area. He will then spend 3 weeks in hospital during which time he will initially be fed via a tube in his neck!

Before all this happens he will be on a course of chemo for three months, then rest for a further two before having the op.

So he is in for a tough time me thinks. He mentioned to the consultant today he was thinking about not actually having the op due to how it will leave him - careful what he eats, will not want to eat a full meal again, can't do any manual work anymore etc (his done manual work all his life). The consultant suggested he goes ahead with the op, without it he would be dead within 16 months and it would not be a pleasant death at that!!!

Anyway, thats depressing enough for one night! Sometimes you can be thankful that they didn't find any issues, although it must be frustrating if you experience pain etc.

Hope you/they soon find the cause of your issue Pimmo and its not so serious.

Good luck!
That is bad news and as you say he is in for a tough time and it will be a long road back to being clear and recovering from the operation.

I suggest that you back up the surgeon as I imagine you have done when it comes to having the operation done. He has been told what will happen if he doesn't and he will be very much worse off if he refuses it.

I hope he does go along with it and that it all goes smoothly for him.

Les
Old 03 June 2011, 02:34 PM
  #102  
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Pimmo, I am surprised that they seem to be trying to ease the problem rather than making a proper effort to find out the possible cause.

Might be worth asking for very positive questions about it all and what they think is the real reason. If they can't say then I think I would request the necessary actions to find out.

Les
Old 03 June 2011, 04:19 PM
  #103  
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Stiscooby - very sorry to hear your Dads news.
Hope he comes through it (obviously).

My endo appears to be all clear - the Dr couldn't find anything untoward. (unpleasant as it is, it doesn't hurt).

To be honest, the pains I experienced a few months ago don't seem to come much now, just every now and then.

Don't really know what to suggest to you now Pimmo.
All the best though.
Old 03 June 2011, 04:55 PM
  #104  
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Originally Posted by Leslie
Pimmo, I am surprised that they seem to be trying to ease the problem rather than making a proper effort to find out the possible cause.

Might be worth asking for very positive questions about it all and what they think is the real reason. If they can't say then I think I would request the necessary actions to find out.

Les
The doctor has put his hands up and said he doesn't know .. reflux was shown so he thinks it that.
Old 04 June 2011, 11:07 AM
  #105  
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Not good enough I reckon Pimmo.

Les
Old 11 October 2012, 07:14 AM
  #106  
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Sorry to bring back an old thread, but it shows you how long the NHS take to find things ..

I've got a Oesophageal manometry test followed by a 24 hour ph monitoring today .. still trying to find the cause of my pain.

I've been off the nexium for a week, ready for the test and its not nice .. worst thing is it gets me down, makes me feel really delicate and I'm scared the pain will move or increase and stop me breathing ..
Old 11 October 2012, 07:20 AM
  #107  
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It's taken them more than a year to get this far?
That's pretty pathetic even for our stretched NHS.

Hope they sort it this time.
Good luck.
Old 11 October 2012, 08:36 AM
  #108  
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Hi mate I have had all of the test you talk about the worst was the camera down the throat where they take the tissue samples etc by far the second test I had was up my nose and down my throat and lasted about 30-40 mins and had to drink water,swallow,cough etc and then after that came home with a small wire attached to a machine which measured the ph levels everytime I had the pain don't really no it's there but a slightly sore throat in the morning I then went on to have surgery nissans fundoplication (prob spelt wrong) and has totally cured the pain but I couldn't really eat a lot of diff foods for at least 3 months and also am never able to vomit it anymore which for me is the worst as try having a stomach bug without being able to be sick but as only sick every now and then think the pros outweigh the cons if you need to know anything else let me know
Old 11 October 2012, 09:00 AM
  #109  
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Originally Posted by kj200sx
Hi mate I have had all of the test you talk about the worst was the camera down the throat where they take the tissue samples etc by far the second test I had was up my nose and down my throat and lasted about 30-40 mins and had to drink water,swallow,cough etc and then after that came home with a small wire attached to a machine which measured the ph levels everytime I had the pain don't really no it's there but a slightly sore throat in the morning I then went on to have surgery nissans fundoplication (prob spelt wrong) and has totally cured the pain but I couldn't really eat a lot of diff foods for at least 3 months and also am never able to vomit it anymore which for me is the worst as try having a stomach bug without being able to be sick but as only sick every now and then think the pros outweigh the cons if you need to know anything else let me know
Eek that sounds horrible
Old 11 October 2012, 03:06 PM
  #110  
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The worst bit as ever is thinking about it.

I had an endoscopy and the worry was at the start when they told me to swallow as they started to put the camera down. Once that was done, the rest of it was no real problem, the pipe in your throat is not that bad and it didn't take all that long either.

Quite enjoyed the young nurse holding me tight to stop me from moving while it was being done too!

Les ;(
Old 11 October 2012, 05:28 PM
  #111  
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Ok that was horrible .. will give more detail later but it was worse than camera I thought.
Old 11 October 2012, 07:08 PM
  #112  
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What a horrible test, the nurse said I was emotionless, the best patient ever, but that comes with hiding panic having had IBS for so long .. I really didn't enjoy it, no pain (a bit trying to get it up my nose, one side hurt the other side was fine)

I have the ph monitor in place and it's annoying at the back of my throat, but it doesn't hurt, takes about an hour to get used to it. When I eat the food tugs on the tube and makes my nose feel odd, but again not painful, just uncomfortable.

Just hope I don't rip the thing out in my sleep.
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